Peter Beresford Completed 2012
User controlled research is the most developed point along a continuum of user or public involvement in research. User controlled research is usually taken to mean research that is actively initiated, controlled, directed and managed by service users and their organisations, exploring subjects and questions that concern them. The focus of this scoping review is user controlled research in social care. Growing interest in, and application of, this research approach highlights the timeliness of such a review.
The review aimed to look at the characteristics, strengths and limitations of such research, explore its theory and use examples to illuminate its policy and practice. Social care is concerned with meeting the support needs of a wide range of people, including disabled people, mental health service users, older people and people with learning disabilities. Insights from user controlled research may improve understanding of social care – how it is offered and also how needs for social care support may be reduced.
The review explored the following in relation to user controlled research in social care:
The review highlighted that there are many different ways of undertaking user controlled research, in terms of where it is located, who is involved, at what stages there is user involvement, how research is controlled and what research methods and approaches are adopted.
It also highlighted challenges for user controlled research for the future, building on what is now known currently. While user controlled research has made enormous progress over a short time, establishing itself as a new and valued research approach, making its mark on research discussions and structures, as well as resulting in a growing number and range of research projects and developing qualitative and quantitative research methods, its position is not secure. It also noted the importance of working to safeguard the sustainability of user
controlled research for the future.
The review set out a series of important active steps that need to be taken: